SMILe: Development and Testing of an Integrated Model of Care in the Continuum of Allogeneic Hematopoietic SteM Cell TransplantatIon faciLitated by eHealth
Third-party funded project
Project title SMILe: Development and Testing of an Integrated Model of Care in the Continuum of Allogeneic Hematopoietic SteM Cell TransplantatIon faciLitated by eHealth
Principal Investigator(s) De Geest, Sabina M.
Project Members Leppla, Lynn
Valenta, Sabine
Ribaut, Janette
Mielke, Juliane
Schmid, Anja
De Geest, Sabina M.
Organisation / Research unit Departement Public Health / Pflegewissenschaft (De Geest)
Project start 01.01.2017
Probable end 31.12.2020
Status Active
Abstract

Allogeneic Hematopoietic Stem Cell Transplantation (HSCT) follow-up care is challenged by an increasing number of long-term survivors. Given the high risk for the occurrence for Graft versus Host Disease (GvHD) and other co-morbidities after HSCT, the HSCT setting would benefit from an Integrated Model of Care in Long-Term Follow-Up after Allogeneic Hematopoietic SteM Cell Transplantation faciLitated by eHealth Technology (SMILe). Based on the principles of chronic illness management, such a novel model of care has the potential to 1) improve the continuity of HSCT care; 2) address not only the biomedical but also the self-management and psychosocial dimensions of HSTC follow-up care; and 3) bring needed innovation to enhance clinical outcomes and increase transplant centers’ capacity. The latter has been put forward in a recent NIH report and statements by the American Society of Hematology. Before implementing an eHealth-powered model of care a good understanding of practice patterns and context of HSCT follow-up care and the level of technology openness of HSCT patients and clinicians is needed.

Financed by Foundations and Associations
   

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14/08/2020