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Ethical considerations in pediatric genom-wide sequencing (add.)
Project funded by own resources
Project title Ethical considerations in pediatric genom-wide sequencing (add.)
Principal Investigator(s) Elger, Bernice Simone
Eichinger, Johanna
Organisation / Research unit Ethik / Bio- und Medizinethik (Elger)
Project start 01.06.2023
Probable end 31.12.2023
Status Completed
Abstract

Whole exome sequencing (WES) and whole genome sequencing (WGS) are increasingly used in healthcare and research to identify genetic variations, assisting disease diagnosis and prognosis as well as treatment decisions. Besides many potential benefits of WES/WGS for medical care, it also involves a number of important regulatory and ethical challenges. However, there is currently a lack of empirical research on the ethical issues surrounding WGS/WES in Switzerland. It is crucial to investigate the country-specific attitudes, values, beliefs and resulting needs of the relevant stakeholders in Switzerland as an assessment of these is highly valuable for any policy guidance and ethical use of the techniques.

Financed by Other funds

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