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A National Survey Comparing Patients' and Transplant Professionals' Research Priorities in the Swiss Transplant Cohort Study
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 4644916
Author(s) Beckmann, Sonja; Mauthner, Oliver; Schick, Liz; Rochat, Jessica; Lovis, Christian; Boehler, Annette; Binet, Isabelle; Huynh-Do, Uyen; De Geest, Sabina; Psychosocial Interest Group,; Swiss Transplant Cohort Study,
Author(s) at UniBasel Beckmann, Sonja
Mauthner, Oliver
De Geest, Sabina M.
Year 2022
Title A National Survey Comparing Patients' and Transplant Professionals' Research Priorities in the Swiss Transplant Cohort Study
Journal Transplant International
Volume 35
Pages / Article-Number 10255
Keywords organ transplantation; patient involvement; qualitative methods; registry-based study; research priorities
Mesh terms Cohort Studies; Female; Focus Groups; Humans; Pregnancy; Qualitative Research; Research; Surveys and Questionnaires; Switzerland
Abstract We aimed to identify, assess, compare and map research priorities of patients and professionals in the Swiss Transplant Cohort Study. The project followed 3 steps. 1) Focus group interviews identified patients' (; n; = 22) research priorities. 2) A nationwide survey assessed and compared the priorities in 292 patients and 175 professionals. 3) Priorities were mapped to the 4 levels of Bronfenbrenner's ecological framework. The 13 research priorities (financial pressure, medication taking, continuity of care, emotional well-being, return to work, trustful relationships, person-centredness, organization of care, exercise and physical fitness, graft functioning, pregnancy, peer contact and public knowledge of transplantation), addressed all framework levels: patient (; n; = 7), micro (; n; = 3), meso (; n; = 2), and macro (; n; = 1). Comparing each group's top 10 priorities revealed that continuity of care received highest importance rating from both (92.2% patients, 92.5% professionals), with 3 more agreements between the groups. Otherwise, perspectives were more diverse than congruent: Patients emphasized patient level priorities (emotional well-being, graft functioning, return to work), professionals those on the meso level (continuity of care, organization of care). Patients' research priorities highlighted a need to expand research to the micro, meso and macro level. Discrepancies should be recognized to avoid understudying topics that are more important to professionals than to patients.
Publisher Frontiers Media
ISSN/ISBN 0934-0874 ; 1432-2277
edoc-URL https://edoc.unibas.ch/88573/
Full Text on edoc Available
Digital Object Identifier DOI 10.3389/ti.2022.10255
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/35664427
ISI-Number WOS:000822659300001
Document type (ISI) Journal Article
 
   

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