Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
ID 4624718
Author(s) Martani, Andrea; Geneviève, Lester Darryl; Egli, Sophia Mira; Erard, Frédéric; Wangmo, Tenzin; Elger, Bernice Simone
Author(s) at UniBasel Martani, Andrea
Geneviève, Lester Darryl
Egli, Sophia Mira
Wangmo, Tenzin
Elger, Bernice Simone
Year 2021
Title Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework
Journal Frontiers in Public Health
Volume 9
Pages / Article-Number 668386
Keywords Switzerland; biomedical research; e-health; health data; health informatics; health policy
Mesh terms Attitude; Health Policy; Humans; Qualitative Research; Switzerland
Abstract Background:; Facilitating access to health data for public health and research purposes is an important element in the health policy agenda of many countries. Improvements in this sense can only be achieved with the development of an appropriate data infrastructure and the implementations of policies that also respect societal preferences. Switzerland is a revealing example of a country that has been struggling to achieve this aim. The objective of the study is to reflect on stakeholders' recommendations on how to improve the health data framework of this country.; Methods:; We analysed the recommendations collected as part of a qualitative study including 48 expert stakeholders from Switzerland that have been working principally with health databases. Recommendations were divided in themes and subthemes according to applied thematic analysis.; Results:; Stakeholders recommended several potential improvements of the health data framework in Switzerland. At the general level of mind-set and attitude, they suggested to foster the development of an explicit health data strategy, better communication and the respect of societal preferences. In terms of infrastructure, there were calls for the creation of a national data center, the improvement of IT solutions and the use of a Unique Identifier for patient data. Lastly, they recommended harmonising procedures for data access and to clarify data protection and consent rules.; Conclusion:; Recommendations show several potential improvements of the health data framework, but they have to be reconciled with existing policies, infrastructures and ethico-legal limitations. Achieving a gradual implementation of the recommended solutions is the preferable way forward for Switzerland and a lesson for other countries that are also seeking to improve health data access for public health and research purposes.
Publisher Frontiers Media
ISSN/ISBN 2296-2565
edoc-URL https://edoc.unibas.ch/84343/
Full Text on edoc No
Digital Object Identifier DOI 10.3389/fpubh.2021.668386
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/34136456
ISI-Number WOS:000661090900001
Document type (ISI) Journal Article

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