Data Entry: Please note that the research database will be replaced by UNIverse by the end of October 2023. Please enter your data into the system Thanks

Login for users with Unibas email account...

Login for registered users without Unibas email account...

In the name of the family? Against parents' refusal to disclose prognostic information to children
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
ID 4618920
Author(s) Rost, Michael; Mihailov, Emilian
Author(s) at UniBasel Rost, Michael
Year 2021
Title In the name of the family? Against parents' refusal to disclose prognostic information to children
Journal Medicine, health care, and philosophy
Volume 24
Number 3
Pages / Article-Number 421-432
Abstract Parents frequently attempt to shield their children from distressing prognostic information. Pediatric oncology providers sometimes follow parental request for non-disclosure of prognostic information to children, invoking what we call the stability of the family argument. They believe that if they inform the child about terminal prognosis despite parental wishes, cohesion and family structure will be severely hampered. In this paper, we argue against parental request for non-disclosure. Firstly, we present the stability of the family argument in more detail. We, then, set out the (conceptual, legal, systemic) entitativity of the family and the kind of value the stability of the family argument assumes, before we set on to critically evaluate the argument. Our analysis shows that disclosure of prognostic information to children does not necessarily destabilize the fam- ily to a greater extent than non-disclosure. In fact, a systemic perspective suggests that mediated disclosure is more likely to result in a (long-term) stability of the family than non-disclosure. It is in the interest of the family to resist the initial aversive reaction to delivering bad news. In the final part, we draw a set of recommendations on how to facilitate decision-making in face of parental request for non-disclosure.
Publisher Springer
ISSN/ISBN 1386-7423 ; 1572-8633
Full Text on edoc No
Digital Object Identifier DOI 10.1007/s11019-021-10017-4
PubMed ID
ISI-Number WOS:000639764100001
Document type (ISI) Article

MCSS v5.8 PRO. 0.412 sec, queries - 0.000 sec ©Universität Basel  |  Impressum   |