The awareness, visibility and support for young carers across Europe: a Delphi study
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 4618221
Author(s) Nap, Henk Herman; Hoefman, Renske; de Jong, Nynke; Lovink, Lieke; Glimmerveen, Ludo; Lewis, Feylyn; Santini, Sara; D'Amen, Barbara; Socci, Marco; Boccaletti, Licia; Casu, Giulia; Manattini, Alessandra; Brolin, Rosita; Sirk, Karina; Hlebec, Valentina; Rakar, Tatjana; Hudobivnik, Tjasa; Leu, Agnes; Berger, Fabian; Magnusson, Lennart; Hanson, Elizabeth
Author(s) at UniBasel Leu, Agnes
Year 2020
Title The awareness, visibility and support for young carers across Europe: a Delphi study
Journal BMC Health Services Research
Volume 17
Number 18
Pages / Article-Number 921
Keywords Informal care, Family care, Delphi study, Adolescent young carers, Young carers, Support services, European research, Cross-national research
Mesh terms Adolescent; Adolescent Behavior; Caregivers, psychology; Europe; Female; Grandparents; Humans; Intergenerational Relations; Male; Quality of Life; Surveys and Questionnaires
Abstract Across Europe, young carers (YCs) and their need for support receive limited attention in the media, policy and empirical research, even though, similar to adult carers, they also provide care to ill family members. The Delphi study, a qualitative research methodology, which provides the focus for this article, had the overall aim of exploring existing successful strategies to support YCs. Compared to YCs, even less is known about adolescent young carers (AYCs), a group that is in a critical life transition phase. The study forms part of an EU Horizon 2020 funded research project on AYCs aged 15-17 years old. Methods A two-round Delphi study was conducted with 66 experts on YCs from 10 European countries. Topics included: (i) visibility and awareness-raising of YCs at local, regional, and national levels, (ii) current interventions to support YCs, and (iii) future strategies to support YCs. Results Experts reported a lack of visibility and awareness about YCs in general, and AYCs in particular. Although awareness is slowly increasing in most countries, with the UK ranked highest, experts acknowledged that it remains challenging to identify YCs in many countries. Furthermore, the level and type of support available for YCs differs, with most countries mainly offering support on a local level. Diverse views were expressed regarding future strategies to support YCs. Experts highlighted the importance of specific legislation to formalise the rights of YCs, and the issue of whether young people should be safeguarded from caregiving or if this should be considered part of regular family life. They also emphasised the relevance of available integrated support services for YCs, including schools, family, health and social care. Conclusions In most European countries, there is a lack of awareness and visibility on YCs. Identification of YCs is a crucial first step and there is need for a common definition of YCs, together with greater opportunities for young adults to identify themselves as YCs.
Publisher BioMed Central
ISSN/ISBN 1472-6963
edoc-URL https://edoc.unibas.ch/82494/
Full Text on edoc Available
Digital Object Identifier DOI 10.1186/s12913-020-05780-8
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/32927827
Document type (ISI) Journal Article
 
   

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