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SMILe_Towards implementation of an Integrated Model of Care in Long-Term Follow-Up after Allogeneic Hematopoietic SteM Cell TransplantatIon faciLitated by eHealth Technology - An effectiveness-implementation science study
Third-party funded project |
Project title |
SMILe_Towards implementation of an Integrated Model of Care in Long-Term Follow-Up after Allogeneic Hematopoietic SteM Cell TransplantatIon faciLitated by eHealth Technology - An effectiveness-implementation science study |
Principal Investigator(s) |
De Geest, Sabina M.
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Project Members |
Leppla, Lynn Valenta, Sabine Mielke, Juliane Ribaut, Janette
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Organisation / Research unit |
Departement Public Health / Institut für Pflegewissenschaft, Departement Public Health / Pflegewissenschaft (De Geest) |
Department |
Departement Public Health |
Project start |
01.01.2017 |
Probable end |
31.05.2025 |
Status |
Active |
Abstract |
Allogeneic Hematopoietic Stem Cell Transplantation (HSCT) follow-up care is challenged by an increasing number of long-term survivors. Given the high risk for the occurrence for Graft versus Host Disease (GvHD) and other co-morbidities after HSCT, the HSCT setting would benefit from an Integrated Model of Care in Long-Term Follow-Up after Allogeneic Hematopoietic SteM Cell Transplantation faciLitated by eHealth Technology (SMILe). Based on the principles of chronic illness management, such a novel model of care has the potential to 1) improve the continuity of HSCT care; 2) address not only the biomedical but also the self-management and psychosocial dimensions of HSTC follow-up care; and 3) bring needed innovation to enhance clinical outcomes and increase transplant centers’ capacity. The latter has been put forward in a recent NIH report and statements by the American Society of Hematology. Before implementing an eHealth-powered model of care a good understanding of practice patterns and context of HSCT follow-up care and the level of technology openness of HSCT patients and clinicians is needed. |
Financed by |
Foundations and Associations
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29/03/2024
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