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Adapting a peer-led self-management program for breast cancer survivors in Switzerland using a co-creative approach
Journal
Patient Education and Counseling
Volume
103
Number
9
Pages / Article-Number
1780-1789
Keywords
breast cancer; cancer survivorship; co-creation; peer-led; self-management
Mesh terms
Adaptation, Psychological; Adult; Breast Neoplasms, rehabilitation; Cancer Survivors, psychology; Female; Humans; Middle Aged; Patient Participation; Patient-Centered Care; Peer Group; Quality of Life, psychology; Self Care, psychology; Self-Management; Switzerland
Abstract
The peer-led Cancer Thriving and Surviving Program (CTS) has demonstrated improved health outcomes for cancer survivors. We describe a co-creative process for adapting the CTS for breast cancer survivors in Switzerland and integrating the program into the clinical pathway of Swiss breast centers.; A co-creative approach was employed. Breast cancer survivors and health care professionals (total n = 81) participated in three workshops, an online rating, and a consensus conference. An iterative cycle (evidence, ideas, refining, rating, and synthesis) guided the adaptation process.; Survivors involvement in the adaptation process allowed to tailor the self-management program to the psychosocial needs identified as the highest priority. New contents "Being a woman", "Breast cancer and my (working) life" and "My exercise" were added to the CTS. Program duration was expanded from 6 to 7 weeks. Transition to follow-up care was considered as the optimal time point for program integration into the clinical pathway.; The co-creative process may serve as a model in adapting supportive interventions for cancer. A subsequent pilot testing examined the feasibility and preliminary efficacy.; Combining expertise of health care professionals and patients to co-create a peer-led breast cancer self-management program may enhance acceptability and adoption.
