Examining information-seeking behavior in genetic testing for cancer predisposition: A qualitative interview study
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 4606390
Author(s) Zimmermann, Bettina M.; Fanderl, Julia; Koné, Insa; Rabaglio, Manuela; Bürki, Nicole; Shaw, David M.; Elger, Bernice
Author(s) at UniBasel Zimmermann, Bettina
Koné, Insa
Shaw, David
Elger, Bernice Simone
Year 2021
Title Examining information-seeking behavior in genetic testing for cancer predisposition: A qualitative interview study
Journal Patient Education and Counseling
Volume 104
Number 2
Pages / Article-Number 257-264
Keywords BRCA; Cancer predisposition; Genetic testing; Health communication; Information-seeking behavior
Abstract This study aims to assess information needs and information sources and seeks to illustrate what at-risk individuals consider motivators of and barriers to information-seeking before and after genetic testing for cancer predisposition.; Semi-structured interviews with people seeking genetic counseling in Switzerland were analyzed qualitatively using thematic analysis. Wilson's model of information behavior was the theoretical framework.; We identified four themes that illustrate motivators of and barriers to information-seeking: attitudes and emotions; knowledge; social environment; and demographic factors. We also elucidated information needs and collected participants' information sources.; This study£s empirical approach helps healthcare professionals to understand their patients' behaviors and wishes concerning information-seeking more concretely than theoretical models alone. The study also identifies information gaps, especially outside the genetic counseling setting.; Genetic counselors and other healthcare professionals need to purposefully assist patients in finding trustworthy and accessible information. Healthcare professionals in all disciplines need to be educated about predictive genetic testing.
Publisher Elsevier
ISSN/ISBN 0738-3991 ; 1873-5134
edoc-URL https://edoc.unibas.ch/79305/
Full Text on edoc No
Digital Object Identifier DOI 10.1016/j.pec.2020.09.019
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/32988685
Document type (ISI) Journal Article
 
   

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