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Testing Adolescents for a Hereditary Breast Cancer Gene (BRCA1): Respecting Their Autonomy Is in Their Best Interest
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 4527593
Author(s) Elger, B. S.; Harding, T. W.
Author(s) at UniBasel Elger, Bernice Simone
Year 2000
Title Testing Adolescents for a Hereditary Breast Cancer Gene (BRCA1): Respecting Their Autonomy Is in Their Best Interest
Journal Archives of Pediatrics & Adolescent Medicine
Volume 154
Number 2
Pages / Article-Number 113-9
Keywords Genetics and Reproduction
Mesh terms Adolescent; Age Factors; Breast Neoplasms, genetics; Female; Freedom; Genes, BRCA1; Genetic Testing; Humans; Patient Advocacy; Patient Participation
Abstract The testing of individuals before the age of 18 years for hereditary late-onset diseases has been judged ethically not acceptable in guidelines and directives published by medical professional organizations. However, there are not enough best interest arguments to deny genetic testing to an adolescent at risk of carrying a BRCA1 mutation, even if the competence of adolescents for medical decisions is considered to be lower than the competence of adults. The adolescent's decision is not irrational or of very high risk. Respecting adolescents' autonomous choices concerning genetic testing has positive consequences for their self-esteem and psychological health. Geneticists and other professionals should clearly differentiate between children and adolescents in regard to BRCA1 gene testing and recommend giving decision autonomy about the test to all psychologically "normal" adolescents.
Publisher American Medical Association
ISSN/ISBN 1072-4710 ; 1538-3628
edoc-URL https://edoc.unibas.ch/75058/
Full Text on edoc No
Digital Object Identifier DOI 10.1001/archpedi.154.2.113
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/10665596
ISI-Number WOS:000085193100001
Document type (ISI) Journal Article
 
   

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