Adult patients' experiences of symptom management during pulmonary exacerbations in cystic fibrosis: A thematic synthesis of qualitative research
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 4525118
Author(s) Schmid-Mohler, Gabriela; Yorke, Janelle; Spirig, Rebecca; Benden, Christian; Caress, Ann-Louise
Author(s) at UniBasel Spirig, Rebecca
Year 2019
Title Adult patients' experiences of symptom management during pulmonary exacerbations in cystic fibrosis: A thematic synthesis of qualitative research
Journal Chronic illness
Volume 15
Number 4
Pages / Article-Number 245-263
Keywords Qualitative method; cystic fibrosis; exacerbation; literature review; symptom management theory; thematic synthesis
Abstract Objective The aim of this review was to describe how patients experience an exacerbation of cystic fibrosis in terms of symptom management. Methods A systematic literature search was performed in MEDLINE, CINAHL, EMBASE, PSYCINFO and ASSIA. Studies were included that contained any direct quotes or summaries of quotes from patients with cystic fibrosis aged 16 or older and were related to symptom experience and management during an exacerbation. Framework analysis, guided by Symptom Management Theory, was used to present the findings. Results The review included 18 qualitative studies. In addition to physiological symptoms, patients highlighted the significant role of psychological symptoms. Delayed help-seeking was a common first response. Participants choose their self-management strategies taking both physiological and psychological symptoms into account. Maintaining normality was an important short-term outcome for patients, leading to conflict with health professionals. Patients' symptom management during exacerbation was greatly influenced by the structure of cystic fibrosis care. Discussion Our findings provide an initial understanding of factors influencing patient self-management during an exacerbation. The transferal of these findings into clinical practice will provide a basis for shared goal setting and intervention planning. In addition, our findings have implications for future development of patient-reported outcome measures and intervention research.
Publisher Maney Publishing
ISSN/ISBN 1742-3953 ; 1745-9206
URL https://doi.org/10.1177/1742395318772647
edoc-URL https://edoc.unibas.ch/74220/
Full Text on edoc No
Digital Object Identifier DOI 10.1177/1742395318772647
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/29742923
ISI-Number WOS:000485261900001
Document type (ISI) Journal Article
 
   

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04/08/2020