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Factors influencing harmonized health data collection, sharing and linkage in Denmark and Switzerland: A systematic review
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 4523817
Author(s) Geneviève, Lester Darryl; Martani, Andrea; Mallet, Maria Christina; Wangmo, Tenzin; Elger, Bernice Simone
Author(s) at UniBasel Wangmo, Tenzin
Geneviève, Lester
Martani, Andrea
Elger, Bernice Simone
Year 2019
Title Factors influencing harmonized health data collection, sharing and linkage in Denmark and Switzerland: A systematic review
Journal PLoS ONE
Volume 14
Number 12
Pages / Article-Number e0226015
Abstract The digitalization of medicine has led to a considerable growth of heterogeneous health datasets, which could improve healthcare research if integrated into the clinical life cycle. This process requires, amongst other things, the harmonization of these datasets, which is a prerequisite to improve their quality, re-usability and interoperability. However, there is a wide range of factors that either hinder or favor the harmonized collection, sharing and linkage of health data.; This systematic review aims to identify barriers and facilitators to health data harmonization-including data sharing and linkage-by a comparative analysis of studies from Denmark and Switzerland.; Publications from PubMed, Web of Science, EMBASE and CINAHL involving cross-institutional or cross-border collection, sharing or linkage of health data from Denmark or Switzerland were searched to identify the reported barriers and facilitators to data harmonization.; Of the 345 projects included, 240 were single-country and 105 were multinational studies. Regarding national projects, a Swiss study reported on average more barriers and facilitators than a Danish study. Barriers and facilitators of a technical nature were most frequently reported.; This systematic review gathered evidence from Denmark and Switzerland on barriers and facilitators concerning data harmonization, sharing and linkage. Barriers and facilitators were strictly interrelated with the national context where projects were carried out. Structural changes, such as legislation implemented at the national level, were mirrored in the projects. This underlines the impact of national strategies in the field of health data. Our findings also suggest that more openness and clarity in the reporting of both barriers and facilitators to data harmonization constitute a key element to promote the successful management of new projects using health data and the implementation of proper policies in this field. Our study findings are thus meaningful beyond these two countries.
Publisher Public Library of Science
ISSN/ISBN 1932-6203
edoc-URL https://edoc.unibas.ch/73805/
Full Text on edoc No
Digital Object Identifier DOI 10.1371/journal.pone.0226015
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/31830124
ISI-Number MEDLINE:31830124
Document type (ISI) Journal Article
 
   

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