Ethical issues in governing biobanks: Global Perspectives
Authored Book (Verfasser eines eigenständigen Buches)
ID 4514686
Author(s) Elger, Bernice S.; Biller-Andorno, Nikola; Mauron, Alexandre; Capron, Alexander M.
Author(s) at UniBasel Elger, Bernice Simone
Biller-Andorno, Nikola
Capron, Alexander Morgan
Year 2008
Title Ethical issues in governing biobanks: Global Perspectives
Publisher Ashgate
Place of Publication London
ISSN/ISBN 978-0-7546-7255-5
Keywords Genome, Human — Databases, Genetic⁄ethics — Databases, Genetic⁄legislation & jurisprudence — Genetic Research⁄ethics — Genetics, Population⁄ethics — Confidentiality
Abstract Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks.
Full Text on edoc No

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