Towards implementation of an Integrated Model of Care in Long- Term Follow-Up after Allogeneic Hematopoietic SteM Cell TransplantatIon faciLitated by eHealth Technology in Switzerland: The SMILe project
Third-party funded project
Project title Towards implementation of an Integrated Model of Care in Long- Term Follow-Up after Allogeneic Hematopoietic SteM Cell TransplantatIon faciLitated by eHealth Technology in Switzerland: The SMILe project
Principal Investigator(s) De Geest, Sabina M.
Project Members Leppla, Lynn
Valenta, Sabine
Organisation / Research unit Departement Public Health / Institut für Pflegewissenschaft,
Departement Public Health / Pflegewissenschaft (De Geest)
Project start 01.01.2018
Probable end 31.12.2021
Status Active
Abstract

Allogeneic Hematopoietic Stem Cell Transplantation (HSCT) follow-up care is challenged by an increasing number of long-term survivors. Given the high risk for the occurrence for Graft versus Host Disease (GvHD) and other co-morbidities after HSCT, the HSCT setting would benefit from an Integrated Model of Care in Long-Term Follow-Up after Allogeneic Hematopoietic SteM Cell Transplantation faciLitated by eHealth Technology (SMILe). Based on the principles of chronic illness management, such a novel model of care has the potential to 1) improve the continuity of HSCT care; 2) address not only the biomedical but also the self-management and psychosocial dimensions of HSTC follow-up care; and 3) bring needed innovation to enhance clinical outcomes and increase transplant centers’ capacity. The latter has been put forward in a recent NIH report and statements by the American Society of Hematology. Before implementing an eHealth-powered model of care a good understanding of practice patterns and context of HSCT follow-up care and the level of technology openness of HSCT patients and clinicians is needed.

Financed by Foundations and Associations
   

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