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Palliative care in Swiss pediatric oncology settings: a retrospective analysis of medical records
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
ID 4348492
Author(s) Rost, Michael; Acheson, Elaine; Kühne, Thomas; Ansari, Marc; Pacurari, Nadia; Brazzola, Pierluigi; Niggli, Felix; Elger, Bernice; Wangmo, Tenzin
Author(s) at UniBasel Rost, Michael
Acheson, Elaine
Pacurari, Nadia
Elger, Bernice Simone
Wangmo, Tenzin
Year 2018
Title Palliative care in Swiss pediatric oncology settings: a retrospective analysis of medical records
Journal Supportive Care in Cancer
Volume 26
Number 8
Pages / Article-Number 2707-2715
Keywords Pediatric palliative care, Decision-making, Involvement of the child, Pediatric oncology
Mesh terms Child; Female; Humans; Male; Medical Records, standards; Neoplasms, therapy; Palliative Care, methods; Retrospective Studies; Sweden
Abstract Purpose This study examined the provision of palliative care and related decision-making in Swiss pediatric oncology settings. The aim was to determine if and when children who died from cancer received palliative care, whether there were differences by cancer diagnosis, and inclusion of children in decision-making regarding palliative care. Methods Using a standardized data extraction form, a retrospective review of medical records of deceased pediatric patients was conducted. The form captured information on demographics, diagnosis, relapse(s), treatments, decision-making during palliative care, and circumstances surrounding a child’s death. Results For 170 patients, there was information on whether the child received palliative care. Among those, 38 cases (22%) did not receive palliative care. For 16 patients, palliative care began at diagnosis. The mean duration of palliative care was 145 days ( Mdn = 89.5, SD = 183.4). Decision to begin palliative care was discussed solely with parent(s) in 60.9% of the cases. In 39.1%, the child was involved. These children were 13.6 years of age ( SD = 4.6), whereas those not included were 7.16 years old ( SD = 3.9). Leukemia patients were less likely to receive palliative care than the overall sample, and patients with CNS neoplasms received palliative care for a longer time than other patients. Conclusions There are still high numbers of late or non-referrals, and even children older than 12 years were not involved in decision-making regarding palliative care. These results do not align with international organizational guidelines which recommend that palliative care should begin at diagnosis.
Publisher Springer
ISSN/ISBN 0941-4355 ; 1433-7339
Full Text on edoc No
Digital Object Identifier DOI 10.1007/s00520-018-4100-x
PubMed ID
ISI-Number WOS:000436242800024
Document type (ISI) Journal Article

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