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Health care Professionals' Experiences and Needs When Delivering End-of-Life Care to Children: A Qualitative Study
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 4267417
Author(s) Bergsträsser, Eva; Cignacco, Eva; Luck, Patricia
Author(s) at UniBasel Cignacco, Eva
Year 2017
Title Health care Professionals' Experiences and Needs When Delivering End-of-Life Care to Children: A Qualitative Study
Journal Palliative care and social practice
Volume 10
Pages / Article-Number 1178224217724770
Abstract Pediatric end-of-life care (EOL care) entails challenging tasks for health care professionals (HCPs). Little is known about HCPs' experiences and needs when providing pediatric EOL care in Switzerland. This study aimed to describe the experiences and needs of HCPs in pediatric EOL care in Switzerland and to develop recommendations for the health ministry. The key aspect in EOL care provision was identified as the capacity to establish a relationship with the dying child and the family. Barriers to this interaction were ethical dilemmas, problems in collaboration with the interprofessional team, and structural problems on the level of organizations. A major need was the expansion of vocational training and support by specialized palliative care teams. We recommend the development of a national concept for the provision of EOL care in children, accompanied by training programs and supported by specialized pediatric palliative care teams located in tertiary children's hospitals.
Publisher SAGE journals
ISSN/ISBN 1178-2242
edoc-URL https://edoc.unibas.ch/59820/
Full Text on edoc No
Digital Object Identifier DOI 10.1177/1178224217724770
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/28835736
ISI-Number MEDLINE:28835736
Document type (ISI) Journal Article
 
   

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