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Aligning guidelines and medical practice: Literature review on pediatric palliative care guidelines
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
ID 4082980
Author(s) De Clercq, Eva; Rost, Michael; Pacurari, Nadia; Elger, Bernice; Wangmo, Tenzin
Author(s) at UniBasel De Clercq, Eva
Rost, Michael
Pacurari, Nadia
Wangmo, Tenzin
Elger, Bernice Simone
Year 2017
Title Aligning guidelines and medical practice: Literature review on pediatric palliative care guidelines
Journal Palliative & supportive care
Volume 15
Number 4
Pages / Article-Number 474-489
Keywords Pediatrics Palliative care Guidelines Barriers Recommendations
Mesh terms Adolescent; Child; Child, Preschool; Evidence-Based Practice, standards; Guidelines as Topic, standards; Humans; Palliative Care, standards; Pediatrics, standards
Abstract Objective: Palliative care for children is becoming an important subspecialty of healthcare. Although concurrent administration of curative and palliative care is recommended, timely referral to pediatric palliative care (PPC) services remains problematic. This literature review aims to identify barriers and recommendations for proper implementation of palliative care for children through the looking glass of PPC guidelines. Method: To identify studies on PPC guidelines, five databases were searched systematically between 1960 and 2015: Scopus, PubMed, PsycINFO, the Web of Science, and CINAHL. No restrictions were placed on the type of methodology employed in the studies. Results: Concerning barriers, most of the papers focused on gaps within medical practice and the lack of evidence-based research. Common recommendations therefore included: training and education of healthcare staff, formation of a multidisciplinary PPC team, research on the benefits of PPC, and raising awareness about PPC. A small number of publications reported on the absence of clear guidance in PPC documents regarding bereavement care, as well as on the difficulties and challenges involved in multidisciplinary care teams. Significance of results: Our results indicate that a critical assessment of both the research guidelines and medical practice is required in order to promote timely implementation of PPC for pediatric patients.
Publisher Cambridge University Press
ISSN/ISBN 1478-9515 ; 1478-9523
Full Text on edoc No
Digital Object Identifier DOI 10.1017/S1478951516000882
PubMed ID
ISI-Number WOS:000405604300009
Document type (ISI) Review

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