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Parents' and Physicians' Perceptions of Children's Participation in Decision-making in Paediatric Oncology: A Quantitative Study
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
ID 4021478
Author(s) Rost, Michael; Wangmo, Tenzin; Niggli, Felix; Hartmann, Karin; Hengartner, Heinz; Ansari, Marc; Brazzola, Perluigi; Rischewski, Johannes; Beck-Popovic, Maja; Kühne, Thomas; Elger, Bernice S.
Author(s) at UniBasel Rost, Michael
Wangmo, Tenzin
Kühne, Thomas
Rischewski, Johannes
Elger, Bernice Simone
Year 2017
Title Parents' and Physicians' Perceptions of Children's Participation in Decision-making in Paediatric Oncology: A Quantitative Study
Journal Journal of Bioethical Inquiry
Volume 14
Number 4
Pages / Article-Number 555-565
Keywords 29022226
Mesh terms Adult; Age Factors; Attitude; Attitude of Health Personnel; Child; Child, Preschool; Decision Making; Female; Humans; Male; Middle Aged; Neoplasms, therapy; Parent-Child Relations; Parents; Patient Participation; Pediatrics; Perception; Physicians; Professional-Family Relations; Prospective Studies; Sex Factors; Surveys and Questionnaires
Abstract The goal is to present how shared decisionmaking in paediatric oncology occurs from the viewpoints of parents and physicians. Eight Swiss Pediatric Oncology Group centres participated in this prospective study. The sample comprised a parent and physician of the minor patient (<18 years). Surveys were statistically analysed by comparing physicians' and parents' perspectives and by evaluating factors associated with children's actual involvement. Perspectives of ninetyone parents and twenty physicians were obtained for 151 children. Results indicate that for six aspects of information provision examined, parents' and physicians' perceptions differed. Moreover, parents felt that the children were more competent to understand diagnosis and prognosis, assessed the disease of the children as worse, and reported higher satisfaction with decision-making on the part of the children. A patient's age and gender predicted involvement. Older children and girls were more likely to be involved. In the decision-making process, parents held a less active role than they actually wanted. Physicians should take measures to ensure that provided information is understood correctly. Furthermore, they should work towards creating awareness for systematic differences between parents and physicians with respect to the perception of the child, the disease, and shared decision-making.
Publisher Springer
ISSN/ISBN 1176-7529 ; 1872-4353
Full Text on edoc Available
Digital Object Identifier DOI 10.1007/s11673-017-9813-x
PubMed ID
ISI-Number WOS:000417043400011
Document type (ISI) Journal Article

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