Respect for patient self-determination as quality indicator in palliative care: current state, problems and solutions in acute care hospitals
Third-party funded project
Project title Respect for patient self-determination as quality indicator in palliative care: current state, problems and solutions in acute care hospitals
Principal Investigator(s) Elger, Bernice Simone
Co-Investigator(s) Wienand Madelon, Isabelle Marie-Odile
Project Members Rakic, Milenko
Organisation / Research unit Ethik / Bio- und Medizinethik (Elger)
Project start 01.05.2015
Probable end 01.05.2018
Status Completed
Abstract

Favoring patient self-determination is a central goal of palliative care and has motivated recent changes
in federal adult protection law. Therefore, quality of palliative care must be measured also in terms of the
extent to which patient self-determination is respected and improved.
The benefits of early intervention in palliative care being proven, mobile specialized palliative care
teams in acute care hospitals are an important but yet under-researched asset in Switzerland.
With the objective to measure quality of palliative care provision, the present study will evaluate and
compare patient self-determination related outcomes and procedures in 3 different settings: the recently
started palliative care consultant service at the University Hospital of Basel which provides decentralized
consultations for inpatients (i) as well as the corresponding mobile consultation at the University
Hospitals of Geneva (main acute care site Cluse-Roseraie) (ii), and palliative care provision at the
specialized palliative ward (iii) of the Inselspital, Bern.

Financed by Foundations and Associations

Published results ()

  ID Autor(en) Titel ISSN / ISBN Erschienen in Art der Publikation
3661535  Rakic, Milenko; Wienand, Isabelle; Shaw, David; Nast, Rebecca L.; Elger, Bernice S.  Autonomy and Fear of Synthetic Biology: How Can Patients' Autonomy Be Enhanced in the Field of Synthetic Biology? A Qualitative Study with Stable Patients  1353-3452 ; 1471-5546  Science and Engineering Ethics  Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) 
3992348  Rakic, Milenko; Dittrich, Tolga; Elger, Bernice S.; Shaw, David  Enhancing patients' autonomy by involving them in research ethics committees  1353-4505 ; 1464-3677  International Journal for Quality in Health Care  Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) 
4169638  Rakic, Milenko; Escher, Monica; Elger, Bernice Simone; Eckstein, Sandra; Pacurari, Nadia; Zwahlen, Susanne; Wienand, Isabelle  Feelings of Burden in Palliative Care: A Qualitative Analysis of Medical Records  0825-8597  Journal of palliative care  Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) 
4478976  Wienand, Isabelle; Rakic, Milenko; Shaw, David; Elger, Bernice S.  The Beneficence of Hope: Findings from a Qualitative Study with Gout and Diabetes Patients  1176-7529 ; 1872-4353  Journal of Bioethical Inquiry  Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) 

Cooperations ()

  ID Kreditinhaber Kooperationspartner Institution Laufzeit - von Laufzeit - bis
3722259  Elger, Bernice Simone  Sandra, Eckstein, Dr. med.  Ärztin Palliative Care, Mitglied Tumorzentrum, Unispital Basel (USB)  01.05.2015  01.05.2018 
3722267  Elger, Bernice Simone  Zwahlen, Susanne, Dr. med.  Ärztin, Universitäres Zentrum für Palliative Care, Inselspital (ISB)  01.05.2015  01.05.2018 
3722269  Elger, Bernice Simone  Escher, Monica, PD Dr.  Ärztin, Equipe Mobile Douleur et Soins Palliatifs, Service de pharmacologie et toxicologie cliniques, Hôpitaux Universitaires de Genève (HUG)  01.05.2015  01.05.2018 
   

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