Body matters : Rethinking the ethical acceptability of non-beneficial clinical research with children
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 2779647
Author(s) De Clercq, Eva; Badarau, Domnita Oana; Ruhe, Katharina M.; Wangmo, Tenzin
Author(s) at UniBasel De Clercq, Eva
Ruhe, Katharina
Wangmo, Tenzin
Badarau, Domnita
Year 2014
Title Body matters : Rethinking the ethical acceptability of non-beneficial clinical research with children
Journal Medicine, health care and philosophy
Volume 18
Number 3
Pages / Article-Number 421-431
Keywords Body, Children, Ethics, Phenomenology, Non-beneficial research, Vulnerability
Abstract

The involvement of children in non-beneficial clinical research is extremely
important for improving pediatric care, but its ethical acceptability is still
disputed. Therefore, various pro-research justifications have been proposed
throughout the years. The present essay aims at contributing to the on-going
discussion surrounding children’s participation in non-beneficial
clinical research. Building on Wendler’s ‘contribution to a valuable project’
justification, but going beyond a risk/benefit analysis, it articulates a
pro-research argument which appeals to a phenomenological view on the
body and vulnerability. It is claimed that children’s bodies are not mere
physical objects, but body-subjects due to which children, as persons, can
contribute to research that may hold no direct clinical benefit to them even
before they can give informed consent.

Publisher Kluwer Academic
ISSN/ISBN 1386-7423
URL http://link.springer.com/article/10.1007/s11019-014-9616-3
edoc-URL http://edoc.unibas.ch/dok/A6328866
Full Text on edoc No
Digital Object Identifier DOI 10.1007/s11019-014-9616-3
ISI-Number WOS:000356937500013
Document type (ISI) Article
 
   

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