A Comparative Study of Fertility Preservation in Paediatric Oncology
Third-party funded project
Project title A Comparative Study of Fertility Preservation in Paediatric Oncology
Principal Investigator(s) Elger, Bernice Simone
Co-Investigator(s) Wangmo, Tenzin
Project Members Barlevy, Dorit
Organisation / Research unit Ethik / Bio- und Medizinethik (Elger)
Project Website http://ibmb.unibas.ch/index.php?id=60987
Project start 01.07.2013
Probable end 30.06.2016
Status Completed
Abstract

With rising survival rates of childhood cancers, physicians now have to increasingly address quality of life issues for their patients. A main concern related to quality of life for childhood cancer survivors is the possible negative effects that cancer therapies can have on their reproductive health. To secure these patients’ option to have biological children, techniques of fertility preservation are employed, some of which are established practice and others only experimental. To date, very little is known about adolescents’ decision making with regard to these fertility preservation options. Thus, the aim of this project is to study how decisions are made regarding fertility preservation in paediatric oncology. The proposed research uses a mixed-methods approach. First, quantitative surveying of pediatric oncologists in Switzerland, Israel, and the United States will take place. The survey will help us understand their attitudes and practices towards fertility preservation for their adolescent patients. Second, adolescent cancer survivors (12 -17 years) and their parents from Israel and the United States will be interviewed regarding the decisions they have made concerning fertility preservation. This comparative study allows us to investigate whether culture influences these decisions. The findings of this study can assist with developing culturally sensitive guidelines for discussions and counseling of fertility preservation for individuals of or prior to reproductive age.

Keywords Ethics, informed consent
Financed by Foundations and Associations

Published results ()

  ID Autor(en) Titel ISSN / ISBN Erschienen in Art der Publikation
4040638  Barlevy, Dorit; Elger, Bernice S.; Wangmo, Tenzin; Ravitsky, Vardit  Adolescent oncofertility discussions: Recommendations from a systematic literature review  2329-4515 ; 2329-4523  AJOB Empirical Bioethics  Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) 
4487108  Barlevy, Dorit; Wangmo, Tenzin; Ash, Shifra; Elger, Bernice S.; Ravitsky, Vardit  Oncofertility Decision Making: Findings from Israeli Adolescents and Parents  2156-5333 ; 2156-535X  Journal of Adolescent and Young Adult Oncology  Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) 
3669571  Barlevy, Dorit; Wangmo, Tenzin; Elger, Bernice S.; Ravitsky, Vardit  Attitudes, Beliefs, and Trends Regarding Adolescent Oncofertility Discussions: A Systematic Literature Review  2156-5333 ; 2156-535X  Journal of Adolescent and Young Adult Oncology  Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) 

Cooperations ()

  ID Kreditinhaber Kooperationspartner Institution Laufzeit - von Laufzeit - bis
1544155  Elger, Bernice Simone  Ravitsky, Vardit, Dr. (thesis supervisor)  University of Montreal, Montreal  01.07.2013  30.06.2016 
2288761  Elger, Bernice Simone; Gumy-Pause, Fabienne  Dr. med. Gumy-Pause, Fabienne  University of Geneva  01.06.2015  31.08.2017 
2337151  Elger, Bernice Simone  Kühne, Thomas, Prof. co-advisor  University Children’s Hospital Basel (UKBB)  01.07.2013  30.06.2016 
   

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17/05/2022