[A challenge in spite of acceptance - how mothers of newborn babies with a "cleft" experience the transition from the hospital back home]

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[A challenge in spite of acceptance - how mothers of newborn babies with a "cleft" experience the transition from the hospital back home]

JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)

ID	1197019
Author(s)	Sieber, Mirjam; Ullmann-Bremi, Andrea; Baenziger, Oskar; Spirig, Rebecca
Author(s) at UniBasel	Spirig, Rebecca
Year	2008
Title	[A challenge in spite of acceptance - how mothers of newborn babies with a "cleft" experience the transition from the hospital back home]
Journal	Pflege
Volume	21
Number	5
Pages / Article-Number	299-307
Abstract	There is almost no empirical data about how mothers of newborn babies with a cleft lip and/or palate manage the transition from the hospital to home. This qualitative study therefore focuses on the experiences of mothers of newborn babies with a cleft lip and palate. Two problem-oriented interviews were conducted with five women. Using a qualitative content analysis, one main category and four sub-categories were defined. The main category called "receive the right kind of help" shows that the women depended on different types of support, concerning various topics from the diagnosis to everyday family life. This is reflected in the sub-categories: a) it is the way it is, b) sudden disappearance of the child, c) time-consuming and difficult nutrition and d) master everyday family-life. These sub-categories display the experiences of mothers of newborn babies with a cleft lip and palate during the transition from hospital to home and point to the big challenge of these mothers in transition. Most important is that health professionals seek to better understand mothers' experiences in this important phase in order to optimize both the support in hospital and outpatient facilities.
Publisher	Hans Huber
ISSN/ISBN	1012-5302
edoc-URL	http://edoc.unibas.ch/dok/A6007179
Full Text on edoc	No
Digital Object Identifier DOI	10.1024/1012-5302.21.5.299
PubMed ID	http://www.ncbi.nlm.nih.gov/pubmed/18850534
ISI-Number	WOS:000260440400002
Document type (ISI)	Journal Article

14/05/2024

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