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Maintaining confidentiality in prospective studies: anonymous repeated measurements via email (ARME) procedure
JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift)
 
ID 1161821
Author(s) Carli, Vladimir; Hadlaczky, GergŲ; Wasserman, Camilla; Stingelin-Giles, Nicola; Reiter-Theil, Stella; Wasserman, Danuta
Author(s) at UniBasel Reiter-Theil, Stella
Stingelin, Nicola
Year 2012
Title Maintaining confidentiality in prospective studies: anonymous repeated measurements via email (ARME) procedure
Journal Journal of medical ethics
Volume 38
Number 2
Pages / Article-Number 127-9
Abstract

Respecting and protecting the confidentiality of data and the privacy of individuals regarding the information that they have given as participants in a research project is a cornerstone of complying with accepted research standards. However, in longitudinal studies, establishing and maintaining privacy is often challenging because of the necessity of repeated contact with participants. A novel internet-based solution is introduced here, which maintains privacy while at the same time ensures linkage of data to individual participants in a repeated measures design. With the use of the anonymous repeated measurements via email (ARME) procedure, two separate one-way communication systems are established through ad hoc email accounts and a secure study website. Strengths and limitations of the approach are discussed.

Publisher BMJ Publishing Group
ISSN/ISBN 0306-6800
edoc-URL http://edoc.unibas.ch/dok/A6002692
Full Text on edoc No
Digital Object Identifier DOI 10.1136/jme.2011.044552
PubMed ID http://www.ncbi.nlm.nih.gov/pubmed/21737838
ISI-Number WOS:000300003700015
Document type (ISI) Article
 
   

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