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Ethical, Legal, Social and Practical Barriers to Sharing between Biobanks in Europe
| Third-party funded project |
| Project title |
Ethical, Legal, Social and Practical Barriers to Sharing between Biobanks in Europe |
| Principal Investigator(s) |
Elger, Bernice Simone
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| Co-Investigator(s) |
Howard, Heidi
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| Organisation / Research unit |
Ethik / Bio- und Medizinethik (Elger) |
| Project start |
01.09.2011 |
| Probable end |
31.08.2013 |
| Status |
Completed |
| Abstract |
In the last two decades, important efforts have been made to organize such biological samples such as tissues, blood, DNA, and cells and to organize data into biobanks in order to make these samples and data available for sharing between researchers. That being said, there remains many barriers and challenges to sharing between researchers and biobanks (whether regionally, nationally or internationally). The overall objective of this research project is to obtain a better definition and understanding of the ethical, legal, social and practical problems preventing the sharing of data and/or samples between biobanks, as well as between researchers, and to suggest ethically sound (i.e. just) solutions that are feasible in practice. |
| Financed by |
Commission of the European Union
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Published results () |
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ID |
Autor(en) |
Titel |
ISSN / ISBN |
Erschienen in |
Art der Publikation |
|
1006811 |
Zawati, Ma'n H; Borry, Pascal; Howard, Heidi Carmen |
Closure of population biobanks and direct-to-consumer genetic testing companies |
0340-6717 |
Human genetics |
Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) |
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1533582 |
Borry, Pascal; van Hellemondt, Rachel E; Sprumont, Dominique; Jales, Camilla Fittipaldi Duarte; Rial-Sebbag, Emmanuelle; Spranger, Tade Matthias; Curren, Liam; Kaye, Jane; Nys, Herman; Howard, Heidi |
Legislation on direct-to-consumer genetic testing in seven European countries |
1018-4813 |
European journal of human genetics |
Publication: JournalArticle (Originalarbeit in einer wissenschaftlichen Zeitschrift) |
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1533611 |
Su, Y.; Otte, I. C.; Borry, P.; Howard, H. C. |
'It's our DNA, we deserve the right to test!? A qualitative analysis of a petition for the right to access direct-to-consumer genetic testing without the intermediate of a health care professional'. |
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Publication: ConferencePaper (Artikel, die in Tagungsbänden erschienen sind) |
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Cooperations () |
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ID |
Kreditinhaber |
Kooperationspartner |
Institution |
Laufzeit - von |
Laufzeit - bis |
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1017825 |
Elger, Bernice Simone |
Manai-Wehrli, Dominique, Prof. Dr. |
Law Faculty University of Geneva |
01.09.2011 |
31.08.2013 |
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1017826 |
Elger, Bernice Simone |
Burton-Jeangros, Claudine, Prof. Dr. |
Départment of Sociology, University of Geneva |
01.09.2011 |
31.08.2013 |
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1017828 |
Elger, Bernice Simone |
Mauron, Alexandre, Dr. |
Bioethics Unit, Faculty of Medicine, University of Geneva |
01.09.2011 |
31.08.2013 |
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1017831 |
Elger, Bernice Simone |
Antonaraki, Stylianos E., Prof. |
Faculty of Medicine, University of Geneva |
01.09.2011 |
30.11.2011 |
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1023168 |
Howard, Heidi |
Borry, Pascal, Prof. Dr. |
Centre for Biomedical Ethics and Law, KULeuven |
01.09.2011 |
31.08.2013 |
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1023170 |
Howard, Heidi |
Pinxten, Wim, Research Fellow |
ErasmusMC, Department of Medical Ethics and Philosophy of Medicine |
01.09.2011 |
31.08.2013 |
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